Help urgently needed to sign a petition

[spiritcharms]

From Sandra Scattergood
i am the mum of a wonderful disabled little girl .Jodie is at a special school that my council refuse to fund .It is a fantastic school and she is doing really well there .Would you consider signing our petition for 10 downing street that i have running at the moment if you would please take a look at Jodie's website. www.jodiesappeal.co.uk

jodie was born with Cerebral Palsy, Hydrocephalus and Epilepsy and in her short life of 13 years she has had to endure over 45 major operation. the only light at the end of this very dark tunnel for Jodie is the special school she attends, that incorporates a special learning system that help children like jodie to sit up, feed herself and even walk.

please sign this petition http://petitions.pm.gov.uk/LEAfight/

after appearing on tv we managed to get the funding for Jodie to attend this special school but for other parents with disabled children, the situation remains the same. it is a shameful situation and there needs to be reform by the goverment who as shown quite clearly that it values money over our disabled children welfare.

Parents of children with Special needs have to fight hard to
get the education their Disabled children deserve. Our LEA has closed all
schools but one and considers this school adequate, despite clear
documentary evidence that this is not the case. Parents are forced into
a tribunal system that claims to be independent, and must fund the
fight themselves. We are forced to fundraise endlessly, to place our
Disabled children in a schools outside the LEA area, that has a proven track record in improving the lives of children with Cerebral Palsy, allowing
them to fulfil their potential in life.

We would like all the help we can get in changing this situation for our disabled children and we kindly and humbly ask anyone to sign our petition.
http://petitions.pm.gov.uk/LEAfight/

Please Help, time is running out.

i hope you agree with me, that this cause is worth breaking a few rules for.

Warm regards

Claire.(Campaign to help Jodie and all disabled children and their families)

 

[Cornish Steve]

Claire,

The last 15 years must have been such a challenge, although I'm sure that Jodie has been worth every day of hard work. Yours must be a very special relationship, which means it must be so frustrating to see how inept the government can be.

Let me be honest, though. I really have a hard time with petitions:

1) They encourage us to help the 'squeakiest wheels'. If someone makes their case better or louder than you, you lose out. It shouldn't be that way.

2) Petitions can be unrealistic. I read the petition you quoted and it asks for a decision that puts parents' wishes above financial considerations. This sounds the right way, but it won't happen.

3) I doubt that the government cares much about petitions, no matter what they say in public. Of course, there's no harm in trying. (Personally, I see the government as the cause of most problems, not the cure - but that is just personal opinion.)

Have you considered approaching private companies to ask for a solution (rather than just a donation)? Some big companies spend rather a lot on worthy initiatives and don't make a big fuss about it. For example, might the company that supplies her medicines be prepared to help? Would they offer a scholarship? In other words, is it worth looking for private funding pf some sort in addition to pursuing the petition route?

PS - what was the date of the news flash about receiving £25,000?

 

[spiritcharms]

This is the link to the video of the TV Show when Jodie was given £25,000

http://uk.youtube.com/watch?v=KAs8a-3MNgQ

Roughly about 8 or 9 months ago now.

Thanks for your reply, and you are right what you say about petitions and the goverment, but you have to do something i guess, and it seems a small thing to put a name to a campain. Just maybe the goverment will see the issue's that some of their policys have created.

What a lot of people dont realise is, for these special little children, they need these schools, and it isnt just about reading and writing. the schools have specially trained staff that help the children to do the things we all take for granted, like sitting, feeding themselves, and even walking.

We dont ask for anything from the goverment for ourselves but for these children, who are after all the most vunerable people in society, who start out life with a fight on their hands, a fight to get a quality of life that we all take for granted. It's for this reason that we have to try anything and everything we can, some may not work, and some may, but it all has a snowball effect that brings attention to the plight of familys with disabled children and the lottery system that deals with the education
provisions for these children.

We can but try i guess.

thanks again

Claire

 

[4little1s]

Afternoon,

I just signed it, we have two small children that have hearing aids and I agree you have to fight for everything,

 

[athermaxen]

You must follow the link in the site to reach at exact position without wasting much time and energy.

 

I have signed. Well done with your campaign. The You Tube link proved just how far you have all struggled

Good luck with everything, have you considered adding this to parenting forums?

Netmums
mumszone
mumsnet etc?

 

[ThomasToscani]

I will sign the petition.

Best of luck to you and your child, spiritcharms.

 

[martin@cc]

I will sign the petition too....good luck to you all

 

[top-click]

I'll also sign it [if I can, the site tells me it's out of date??]- as a dad of two, I know how precious they are.

Have you considered rasing money using Everyclick? They are a client of mine and do some exceptional work with some fantastic causes, "132,727 fundraisers have used Everyclick to raise £582,767.17 for charity" - you can use there site to gather donations, and also sign up so that you can get a share of the pot.

Kind regards
Rob

 

[top-click]

Sorry, meant to post a link, duh,...http://fundraisers.everyclick.com/

I'll also sign it [if I can, the site tells me it's out of date??]- as a dad of two, I know how precious they are.

Have you considered rasing money using Everyclick? They are a client of mine and do some exceptional work with some fantastic causes, "132,727 fundraisers have used Everyclick to raise £582,767.17 for charity" - you can use there site to gather donations, and also sign up so that you can get a share of the pot.

Kind regards
Rob