Chronic Fatigue syndrome

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Mr D

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Feb 12, 2017
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I think you highlight the problem
People that are ill are ill and then for every one of them there are another 500 using medical labels that give others the impression that they have a problem .

sometimes If you upset somebody by mistake and they will say You are causing me anxiety and making me depressed
Most of the time this would be a load of waffle as all you have done is P$$ed them off !

Most of the ones I have met are not using the labels, they have the problem.
Out of hundreds met I can think of just a handful who may have been simply telling people they have a problem.

Many disabilities - like CFS - are invisible. People tend to judge based on what they see.
You can also have two people exactly same disability one can do a lot and one can do little. Each having limitations but not being the same.
 
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Mr D

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It works the other way too.
Mental health problems isn't a; got it - not got issue

As with Autism it's a spectrum - Using OCD as an example

Some people maybe really badly OCD others mildly, but you'll always get some prick thinking they're just making it up and saying why don't they just pull themselves together.

I agree you'll always get some people saying . oh that's just my OCD - when it isn't, but you can't just assume 99.8% of people are faking it

Had to have central heating repaired several years ago, two guys came to work on it.

One was OCD and could not work in any room - house is set up somewhat chaotic as it's set up for me grabbing furniture or getting up off the floor. He could work on the boiler and brace himself for dealing with landing and hallway but could not enter any other room.

Was not messy just so odd to him.
 
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gpietersz

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    People I know who have been, diagnosed with ME, are very active people when they are not suffering from it. Unable to do anything when they are.

    People that are ill are ill and then for every one of them there are another 500 using medical labels that give others the impression that they have a problem

    A problem with many things that are ill defined, from anxiety to gluten intolerance. The latter also makes life hard for people with coeliac disease when people think they are either just gluten intolerant, or, even worse, just being trendy.
     
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    My wife came out with a corker this weekend...

    Annoyed the hell out of me I can tell ye...

    Apparently, according to my wife... (won't say blonde moment here... but...)... Until my 12 year old daughter has been diagnosed as autistic... she's not Autistic... o_O:rolleyes::eek: I was a bit dumbfounded to be honest... the diagnosis will only explain what level of autism she has, or whereabouts on the spectrum she is... she's still Autistic no matter what FFS!

    So basically I replied with.... so what you are saying is... Until you're diagnosed by a doctor as being a complete b1tch you're not a complete b1tch...

    Put a stop to that one... I can tell ya! :D:D:p

    Now and again, my head goes into over-drive... and It's a bit like tourettes... I'll just say whatever comes to mind... doesn't matter who's around... and I can't help it, if I have to say it ... I have to say it...

    So, I tell people I have STS... (Selective Tourette's Syndrome)... they soon shut up and leave me alone... don't even batter an eyelid... :D

    The funniest ones are when I sneeze, and I have to shout COVID!... people's faces... :D it's just a mild twitch I have... I can't help it... it's just not there all the time, so Doctors refuse to diagnose me as being Tourettes... so... my Self assessment will just have to do :D
     
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    Ian J

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    Apparently, according to my wife... (won't say blonde moment here... but...)... Until my 12 year old daughter has been diagnosed as autistic... she's not Autistic... o_O:rolleyes::eek: I was a bit dumbfounded to be honest... the diagnosis will only explain what level of autism she has, or whereabouts on the spectrum she is... she's still Autistic no matter what FFS!

    So basically I replied with.... so what you are saying is... Until you're diagnosed by a doctor as being a complete b1tch you're not a complete b1tch...

    The diagnosis for autism isn't just to tell you that your child is autistic but once it has become official it opens up a whole raft of help
     
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    The diagnosis for autism isn't just to tell you that your child is autistic but once it has become official it opens up a whole raft of help

    I know... I'm Autistic myself... hence my annoyance at the missus' stupid comment... ;)
     
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    MBE2017

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    I know... I'm Autistic myself... hence my annoyance at the missus' stupid comment... ;)

    Insensitive and ill judged perhaps, but I know when my eldest was diagnosed as having ASD my wife took it very badly, not wishing to think our girl was anything but perfect. It took her a couple of years to accept my argument our daughter was still perfect, at least in my eyes. A nicer kinder girl, who thinks of others before herself, you could not hope to find.

    In the lockdown she has been uploading bedtime stories for the youngsters, since most parents never read to their children. She buys the books and gets nothing for doing this except hoping it makes some children happy, and she regularly gets hundreds watching her videos, spread via word of mouth.

    Hopefully your Mrs will get a better understanding of ASD in the near future. Better to know your child has ASD than not IMO.
     
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    Opinion87

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    In the lockdown she has been uploading bedtime stories for the youngsters, since most parents never read to their children. She buys the books and gets nothing for doing this except hoping it makes some children happy, and she regularly gets hundreds watching her videos, spread via word of mouth.

    You, your wife and your daughter should all be very proud, man.
     
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    MBE2017

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    You, your wife and your daughter should all be very proud, man.

    I am, of all my family. Daughter just back from her work with a message regarding potential redundancies. Hopefully she will prove to good to let go, but as a recent starter, she has already dodged one lot of redundancies already.

    Everything now down to how quickly people start to return their kids to schools and nurseries.
     
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    Mr D

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    Zinc, Vitamin C and D, and Tumeric with a bit of Garlic.

    Have it all in a bowl of organic porridge, might help some people.

    https://nutritionfacts.org/ also live on plant-based foods some say it animals are killing us.

    Or have a bacon egg and mushroom bap. Tasty and filling.

    Willing to accept killed by animals if it involves a lifetime of great food.
     
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    Insensitive and ill judged perhaps, but I know when my eldest was diagnosed as having ASD my wife took it very badly, not wishing to think our girl was anything but perfect. It took her a couple of years to accept my argument our daughter was still perfect, at least in my eyes. A nicer kinder girl, who thinks of others before herself, you could not hope to find.

    In the lockdown she has been uploading bedtime stories for the youngsters, since most parents never read to their children. She buys the books and gets nothing for doing this except hoping it makes some children happy, and she regularly gets hundreds watching her videos, spread via word of mouth.

    Hopefully your Mrs will get a better understanding of ASD in the near future. Better to know your child has ASD than not IMO.

    Perhaps... but I'd waiver on the more knob reply. ;)

    This is the thing for me, everyone reacts differently to "diagnosis"... it doesn't matter whether a person is Savant, ADHD, Downs, Autistic, physically disabled, mentally disabled... they're still your child (or brother, sister... etc etc)... to react in horror, or even badly to me only reflects your true compassion for another human being... fair enough, it's something to get use too... but say for the first 5-6 years of that persons life... they're the same as they were before and after the "diagnosis"... it's just putting a label on to someone... granted, as @Ian J pointed out it opens the doors to more help from charities, governments grants etc... but it shouldn't matter...

    My Daughter has been stimming since she was born... it's grown on me and the ex wife, we ignore it... it's just a part of her... she can't control it, my wife isn't affected by her stimming either... I just think it's a bizarre comment to come out with when you can tell... and I mean really tell... she's not just different, she's not "special"... she's just "her".... We as parents, shouldn't need a diagnosis to show she is what she is. (if that makes sense?! :) )
     
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    Mr D

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    Perhaps... but I'd waiver on the more knob reply. ;)

    This is the thing for me, everyone reacts differently to "diagnosis"... it doesn't matter whether a person is Savant, ADHD, Downs, Autistic, physically disabled, mentally disabled... they're still your child (or brother, sister... etc etc)... to react in horror, or even badly to me only reflects your true compassion for another human being... fair enough, it's something to get use too... but say for the first 5-6 years of that persons life... they're the same as they were before and after the "diagnosis"... it's just putting a label on to someone... granted, as @Ian J pointed out it opens the doors to more help from charities, governments grants etc... but it shouldn't matter...

    My Daughter has been stimming since she was born... it's grown on me and the ex wife, we ignore it... it's just a part of her... she can't control it, my wife isn't affected by her stimming either... I just think it's a bizarre comment to come out with when you can tell... and I mean really tell... she's not just different, she's not "special"... she's just "her".... We as parents, shouldn't need a diagnosis to show she is what she is. (if that makes sense?! :) )


    Unfortunately not all parents accept there is a problem. Some can be in denial for years.
    And painful when they try doing 'normal' stuff that is outside the range of possible.
     
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